tag:blogger.com,1999:blog-17083883331504929942024-03-13T10:41:36.161-07:00RWB & Me...Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.comBlogger1771125tag:blogger.com,1999:blog-1708388333150492994.post-12892039865462156832017-06-21T09:39:00.001-07:002017-06-21T09:40:42.104-07:00EndoscopyThe most recent step in the journey towards weight loss surgery has been an Endoscopy. This is standard practice to ensure there are no problems with my stomach and gastro system. such as ulcers.<br />
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It was a relief to have the appointment booked as it indicates I am one step closer to receiving a surgery date. I'm hoping...hoping in a positive way....that I'll receive a call for a Sept surgery. There is nothing to base this on, just my own wishful thinking. This month is a year since I have begun the process. A year!<br />
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Now, you may not know that I have anxiety and panic attacks when it comes to having medical procedures completed. Once I walked out of a MRI when I found out it would include an injection into my hip socket. Ugh. I always think I am past this but then the panic lifts it's head and demands attention.<br />
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So, in the hospital for the Endoscopy, I thought I could handle it. After I silently cried on the drive and lectured myself and practiced breathing, there was a fragile state of calm. But then I made the mistake of letting a student nurse attempt to start an IV. My veins aren't cooperative at the best of times and under stress its always harder to draw blood. Of course, the Student Nurse, made mistakes with the |IV and it had to be redone.<br />
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Imagine feeling faint, the room turning black, intense nausea, and a sweet nurse who understood. It's amazing what a cold wet cloth and laying down will do for the psyche!<br />
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Still more amazing is to go in for a procedure and wake up back on the unit with no recollection of the process, just the initial insertion of the mouth guard. That is my kind of Endoscopy!<br />
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<tr><td class="tr-caption" style="text-align: center;">Waking up isn't pretty! LOL</td></tr>
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I was pleased to find pictures of my stomach and gastro-intestinal system waiting on the bedside table. Seriously. To have a printed copy of the pictures and results readily available immediately is wonderful.<br />
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And so now, I wait again.Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com1tag:blogger.com,1999:blog-1708388333150492994.post-76069005428593142692017-03-31T11:40:00.002-07:002017-03-31T11:40:52.120-07:00SunschoolingOh, the glorious warm sun warmed us today, Melted some snow. Coaxed us outdoors and allowed us to ignore traditional school room schooling.<br />
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There were Knights by the medieval log pile. The sound of "swords" cracking at they hit one another.<br />
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Our muppet dog bouncing and leaping through the snow like a little lamb.<br />
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The sound of the electric sander buzzing from the barn as a treasure chest is made.<br />
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Nails being hammered into logs in order to make a ladder. For Rhettlandia, I think.<br />
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Spirals made in the snow and filled with bird seed for our forest friends.<br />
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The odd snowball thrown and missing it's target. I need more practice!<br />
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Attitudes were warmed and initiative and creativity grew.<br />
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Some days the work books need to be forgotten and the sunshine, melting snow and forest embraced.Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-89968259425045535702017-03-31T11:35:00.001-07:002017-03-31T11:35:22.228-07:00Surgery Prep Class<a href="http://www.calgarybariatric.ca/">Surgery Prep class</a> was a 2 hr Saturday morning spent listening to a RN and Dietitian explaining what is to come pre-surgery, surgery day and the first few weeks after bariatric surgery. It was definitely interesting and enlightening. Thankfully, there were no huge surprises as I have been reading and attending other classes.<br />
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I am still in waiting mode and have not received a surgery date yet. The earliest would be May and the latest December. Hopefully sooner rather than later, so that this journey can continue forward.<br />
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One piece of instructional information that I took away, which annoyed me, is the every reaching presence of big pharma. Prior to surgery a 3-8 week liquid diet will be necessary to shrink that fat around the liver, which is not news, However, the push of Nestle products is shocking, among other things. Ensure and Glucerna are the recommended liquid meal replacements. This goes against everything in my being as it is not real food. These products are a chemical storm of junk and offer no real nutrition. High protein meal replacements are the stressed by the dietitians, but Ensure Plus high protein is only 12-16 grams of protein. That's hardly high, Why not make our own? Or at least use a higher protein replacement such as Premier Protein which is grams per serving.<br />
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Plus NESTLE People! Nestle is notorious for their unethical practices. Why would a program teaching good health support such a company? Ugh. I could really jump on my soap box here but it's redundant.<br />
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There was approximately 25 attendees of the Surgery Prep class and half of us have received a surgery date. Half were choosing the Sleeve and half Bypass. It was interesting to see those demographics. Of course, we all have our health reasons for these choices.<br />
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Currently, I am paying attention to what |I have learned so far and practicing these skills. It's so easy to slip into long used habits. Always a focused effort to make specific choices in all aspects; Mindful eating. balanced meals. food journalling, sipping water, etc, etc.<br />
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So my journey continues.<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com1tag:blogger.com,1999:blog-1708388333150492994.post-85482330404413584412017-03-15T06:00:00.000-07:002017-03-15T06:00:02.313-07:00Blood Testing RequirementsToday brought yet another doctor's appointment in regards to this bariatric journey. Thankfully it was just a brief meeting with my family doc to request lab reqs for Vitamin D testing. Vitamin D is a healing helper so it's imperative that my levels are in a proper range before surgery. This will also hint at if there are any absorption or nutritional deficiencies. Obviously, malabsorption issues are a red flag prior to a bariatric surgery as after surgery people have a greater chance to develop nutritional deficiencies. Therefore starting off deficient will cause the surgeon to cancel the surgery.<br />
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In Canada, Vitamin D testing is on the lock down. ONLY by special request and for very specific reasons. Why? Purely cost. The test is expensive so Health Canada ( I presume) does not want doctors' requesting the test all willy nilly. Province to province has different rules. In BC family doctors cannot request Vitamin D, only specialists. Here in Alberta, there is a special requisition form and the reasons are very specific as to why a request can be made. In fact there are only four reasons. Malabsorbption is one of them.<br />
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I can provide a week by week account of the changes I am making and the hoops I am jumping through to make this happen. But, is that what you, the reader, wants? Those of you that are following along, feel free to contact me behind the scenes.<br />
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Soon I will be attending a class entitled Keeping the Change. Tips and tricks on maintaining healthy change. This class is an elective class offered by<a href="http://www.calgarybariatric.ca/"> The Calgary Bariatric Clinic.</a><br />
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<u>Bariatric Humour</u><br />
My immediate family is aware of the upcoming surgery. I was a bit nervous about telling the children but they are handling it well and are funny.<br />
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The youngest wants to attend the surgery so that he can watch because it'll be interesting. Ha!! Um, no, you may not, Son. Plus, wouldn't he be disappointed that it's 6 small incisions not a huge hip to hip incision?! "Can I at least be in the waiting room???!!!"<br />
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The other son is excited but thinks it'll be weird having a slimmer mom and it'll take time getting used to me.<br />
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Honestly, hearing and seeing their excitement inspired me to keep going and reaffirmed that this is the best decision for me.<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-25971509284954380572017-03-09T06:30:00.000-08:002017-03-09T06:30:15.126-08:00Backyard Friends<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;">Oh how I love the Grey's. Today brought two to our yard. Two!</td></tr>
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Life in the woods brings sweet visitors to our yard. Well, some are sweet and some are sneaky & take over the feeder. One day I may be found on the deck, using the slingshot to wing ice cubes at that sassy, aggressive squirrel. 😉<br />
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<tr><td class="tr-caption" style="text-align: center;">Sneaky Squirrel snacking at Halloween.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Again with the squirrel, I wish the wood pecker would chase him.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Ruffed grouse dating rituals.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Wee Doe looking for snacks.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Fluffy little Blue Jay resting after snacks.</td></tr>
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<br /><br /><br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-16013946195774822422017-03-08T06:00:00.000-08:002017-03-08T06:00:17.037-08:00Gastric SleeveWell, step two towards weight loss and health gain surgery was completed today.<br />
I met with the surgeon for the first time and the outcome is signing the consent for surgery form. A commitment to <a href="https://myhealth.alberta.ca/health/tests-treatments/pages/conditions.aspx?Hwid=hw252781">Gastric Sleeve</a> surgery. It's real now!<br />
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Even throughout the classes and appointments it is only now that this decision is appearing very real.<br />
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How do I feel?<br />
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Scared! This a lifestyle change of drastic proportions however the results will be worth it. The actual surgery and preparation and healing is what scares me. Did I ever share that I panic over small procedures such as MRI's that require a dye injection into the joint? That I walked out of the appointment?! Oh yeah, super strong here and yet I have committed to Gastric Sleeve surgery!<br />
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Excited? Yes!<br />
Relieved? Yes!<br />
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Energy, good health, lower blood pressure, free of back pain, free of sleep apnea, a fun, energetic, younger mom, wife and friend?| Oh yes, I am looking forward to all of these things and more.<br />
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The next step is two GI tests to ensure that there are no upper GI issues. Then it's waiting for the phone call with a surgery date. Three to nine months is the proposed timeline. It's a long wait, but when one is in the middle, the time is actually passing quite quickly.<br />
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I'll continue to share updates on this journey to good health and smaller pants. As well as details of the process with hopes that my experiences will help others make choices towards good health.<br />
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Today I weighed in at 271.4 lbs. Yup. There ya have it. With a waist circumference of 43 in. Whoa. It's bizarre to see these numbers in print and know they belong to me. My BP was 125/86. This is very high for me. So, you see that making drastic change is imperative to improving my health.<br />
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Can you imagine the courage it takes to be transparent and open on this topic? It's not easy, my friends and it so very easy to judge myself, so hopefully you will find it in your hearts to not judge.<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-24038117726895825712017-03-06T06:00:00.000-08:002017-03-06T06:00:17.413-08:00Wild Child In The Forest SchoolA component of our home school this year includes two days per week at<a href="https://www.wildchildinthewoods.com/"> Wild Child In The Woods </a>Forest School. What a blessing!<br />
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Forest School days are the highlight for Rhett. He LOVES it! Even throughout our mountainy, winter weather, he is the kid that must be strongly encouraged to stay in the Art Shack for warmth. The snowy outdoors is where Rhett's heart and interests lay.<br />
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As a Forest Wildie, Rhett is learning in an environment that resonates with his core. Outdoors, hands on, climbing, hiking, exploring, testing and in a small group of multi-aged children. Some of the topics Rhett has learned about are Jupiter Rocks, building & using small machines, local forest life, trees and plants,long term flood effects on the environment, tracking animals, and of course, social skills.<br />
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When your child tells you "Mom, this is heaven." upon pick-up, it is beyond obvious that he is in his educational element.<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-77835441881535596382017-03-05T10:32:00.002-08:002017-03-05T10:32:23.471-08:00Sensory Seizures?Recently Rhett was admitted to<a href="http://www.albertahealthservices.ca/Facilities/ACH/Default.asp"> Alberta Children's Hospital</a> for LTM VEEG, long term monitoring video<a href="http://www.albertahealthservices.ca/info/facility.aspx?id=1010904&service=1000932"> EEG.</a> He has been experiencing a new<a href="http://www.sturge-weber.org/medical-matters/types-of-seizures.html"> seizure</a> since November, which presents only in his right hand and sometimes he can feel a sensation in his brain. On December 27 his meds were increased but this has had no affect on the seizures. Since Christmas Day we have documented over 200 episodes. I use the<a href="https://www.seizuretracker.com/iPhoneApp/Seizure_Diary_iPhone.php"> Track It Seizure App </a>on my iphone to document. It's not perfect but it's easier than keeping a notebook with me.<br />
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Enter LTM VEEG.<br />
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<tr><td class="tr-caption" style="text-align: center;">EEG Hook up. Calm and patient...such a trooper!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">28 leads later and he's ready for business.</td></tr>
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24hr EEG in hospital. Rhett was a trooper. An EEG rock star! He barely complained, never scratched or dislodged any of the 28 electrodes, and was content. Of course, he wished to be home, was embarrassed of the way he looked with his "long pony tail", wished they weren't spying on him and wanted me with him at all times but he handled all this so well. Rhett really is amazing when it comes to all the hospital procedures. I'm so proud of him.<br />
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<tr><td class="tr-caption" style="text-align: center;">Taking in the view before being confined to bed for 24 hrs.</td></tr>
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Results? Nothing conclusive. Nothing that we wanted to hear. The seizures are not showing on the EEG. Remember an EEG captures surface electrical activity not deep activity.<br />
Of course, the EEG did show frontal lobe spikes, more frequently on the left but definitely from both side of the frontal lobe. This activity is indicative of other TS tumors and not related to the right hand issues.<br />
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<tr><td class="tr-caption" style="text-align: center;">Passing the time with a little "screen time" on the ipad. </td></tr>
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So now what?<br />
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According to the Neuro Doc, we are to not worry about this. It may be anxiety related. Carry on as we are, no med changes, and "don't worry about it".<br />
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**sigh** Easier said than done and not an appropriate outcome for me. How do you tell a child to ignore the sensations in his hand and brain? How are they not related to something deeper? How is this anxiety driven? I can see how it causes anxiety. How is a MEG & MRI not requested as a deeper look? How are<a href="https://www.cedars-sinai.edu/Patients/Health-Conditions/Jacksonian-Seizures.aspx"> Jacksonian Sensory Seizures</a> not considered?<br />
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Many more questions have been created and no answers. This is another hard part of Tuberous Sclerosis and Epilepsy. I want to know why and now what. I want more for Rhett not just a pat he's doing great for one with<a href="http://www.tscanada.ca/"> TSC.</a> Yes, he is doing great, but can't there be more? Better? Greater?<br />
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And so today, our hospital hangover is easing, slowly, and I am struggling with bitterness and anger towards the indifference of Neuro. I'll get past this. I always do, but it has to be worked through and addressed otherwise it eats me up. Sharing and writing and questioning and researching is part of that process. So here I am sharing with all of you. Watching the squirrels chase the blue jays out the sun room window, the dog sleeping in his bed beside me, and listening to the boys watch a movie before we venture outdoors. Onwards and onwards.<br />
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Until next time....Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-10495843371632954442017-03-01T05:00:00.000-08:002017-03-01T05:00:13.026-08:00Weightless Wednesday's....Bariatric SurgeryOh, merely sitting down to write this makes my stomach sink and I can hardly believe I am publicizing my vulnerability.<br />
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Weight and health are two topics that affect me in many ways. I have tried every diet on the planet and have had some success with all of them, if I'm able to follow them for more than a day. However, maintaining those diets aren't possible. The diet business is a multi-billion dollar industry that wants us to fail. Keeps us coming back, right? Keeps us spending money.<br />
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Almost a year ago I began the process of exploring<a href="http://www.calgarybariatric.ca/bariatric-surgery.html"> </a><a href="http://www.calgarybariatric.ca/bariatric-surgery.html">Bariatric Surgery.</a> Here in Canada, there are many criteria to meet in order to be eligible for health care funded surgery. Weight must be at a level that causes health risks and places a person at a very high BMI. Upon referral to the <a href="http://www.calgarybariatric.ca/">Calgary Bariatric Clinic</a>, a patient must commit through behavioral changes, attending classes, many meetings with a Nurse Case Manager, Dietician, Pyschologist, while following suggestions to care for one's health concerns, as well as food journalling. Only after meeting all these criteria is a meeting with the surgeon scheduled.<br />
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I am now at the meeting with the surgeon stage. Next week in fact.<br />
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So exciting!!!<br />
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So scary!!!<br />
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I honestly am so looking forward to the outcome, a month after bariatric surgery when I am losing weight and eating again and healing. Thoughts of actual surgery make me a bit queasy so I shall focus on afterwards: increased health, better mobility, higher energy, smaller clothes, no back pain, no sleep apnea, lower blood pressure, increased confidence, fitting into seats, and active, fun with my family.<br />
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Chronicling this journey will help me stay focused and hopefully support other's who are considering <a href="http://www.calgarybariatric.ca/bariatric-surgery.html">Bariatric Surgery.</a> We all deserve information and support. There has been enough shame and hiding for anyone who is deemed morbidly <a href="http://www.obesitynetwork.ca/understanding-obesity">obese</a>. So, I am blowing the doors open on my fears, heart and excitement. Putting myself out there with you.<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-81619618929918516562017-02-05T09:38:00.001-08:002017-02-05T09:54:07.051-08:00HyggeThis winter Hygge resonates with me. The simple enjoyment of Winter. Less busyness. Embracing the cold and snow. Cozying in. Making the home inviting, and simple in these snowy, cold Winter months.<br />
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Hyyge (Hyu-gah) originates in Denmark. It refers to a mental state of cozy, togetherness in the heart of winter. Until now, the only Danish part of my life is Lego. 😊 Learning about Hygge does not come from my family heritage yet it truly resonates with me.<br />
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To slow down, cozy up, have less commitments, play more, snuggle more, read, wear warm, woolen clothes, drink hot, spicy beverages, have warm homemade soups or chili simmering on the stove, play board games and turn the TV off, enjoy a quiet start to the day in the sun-room, watching the brave, winter birds feast from the feeders and brave the sassy squirrel who never hibernates, enjoy a muppet-esque dog sleeping by my side, content boys, loud boys, hungry boys, my boys, watch the falling snow, light more candles, read books, write here.......all of this is what Hygge means to me.<br />
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<tr><td class="tr-caption" style="text-align: center;">Sleepy muppet-pup.</td></tr>
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As the snow falls and the temperature remains low, I hope you find your state of togetherness and winter peace today.<br />
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xxMrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-74888800418960402192017-02-02T19:19:00.000-08:002017-02-02T19:20:28.708-08:00He's Doing Great........all things considered, for a boy with TS, for a boy with multiple bilateral brain tumors, etc, etc.<br />
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Sadly, this is not enough for me and I want so much more for this boy. Those "he's doing so well" words feel trite.<br />
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<tr><td style="text-align: center;"><a href="https://3.bp.blogspot.com/-T1QyQxgHq-U/WJP11OZ5EFI/AAAAAAAAE9c/geUu22WYqNAmqJssgOdyNnmB2V6lMKl9wCLcB/s1600/RMACHcollage.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="106" src="https://3.bp.blogspot.com/-T1QyQxgHq-U/WJP11OZ5EFI/AAAAAAAAE9c/geUu22WYqNAmqJssgOdyNnmB2V6lMKl9wCLcB/s320/RMACHcollage.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">As we wait to see Dr. Neuro, Rhett is thrilled to pose for a selfie. LOL Um, not so much.</td></tr>
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Yes, I am grateful. Yes, Rhett's health could be oh, so much worse. Yes, we are ever so lucky to have Rhett.<br />
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Yes, we want more for him. We want HOPE and encouragement.<br />
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After, 100+ "seizures" since Christmas Day (and more before which were not documented), we now wait for testing. VEEG (24 hr stay, video EEG) MRI, levels, and mental health. The Neurologist is not convinced that the sensations Rhett is having are seizures as they are focal and affecting one part of his body, not a whole side. BUT something is going on. The brain sensations, the hand sensation, the memory challenges, the processing challenges ("You're confusing me!"). So, we wait for the chances to get answers.<br />
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I hate waiting. Don't you?<br />
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Hopefully the VEEG will take place within 3-4 weeks.<br />
MRI? A year?<br />
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As expected, CBD Oil was not recommended by Neuro. For a few reasons. All reasons which seem to be based on the Big Pharma control factor. Oh, Big Pharma, I have such a tolerance-hate attitude towards you.<br />
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On a secondary note, a new referral for Opthamology at ACH has been requested as it has been several years since Ophthalmology has seen Rhett. Recently, our family Optometrist expressed concern at the size of the tumor in Rhett's right eye. According to the pictures, Dr. B took two weeks ago, the tumor has grown dramatically. Opthamology usually has a three month wait. Hopefully, it's not longer.<br />
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<tr><td class="tr-caption" style="text-align: center;">After a 2hr appointment, "hospital cake" is well deserved.</td></tr>
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So, there ya have it. Rhett continues to seize several times a day and we are waiting for the phone calls to inform us on upcoming appointment times.Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-58437374213786319562017-01-24T20:11:00.000-08:002017-01-24T20:11:47.334-08:00Natural Health Services<div style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px; margin-bottom: 6px;">
Are you interested in CBD Oil? Today we spent a few hours of our time at Natural Health Services with the intent to secure CBD oil for seizure control, anxiety, and attention.</div>
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The following is my experience and impression of the The Natural Health Services Clinic in Calgary. May this give you a small insight into the process to assist in your decisions.</div>
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The clinic is modern, clean, busy and has state of the art on line booking and medical information forms. I appreciate rece<span class="text_exposed_show" style="display: inline;">iving text reminders of upcoming appointments, and the ability to complete forms on line.</span></div>
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Upon arrival, we signed in with the friendly, very patient receptionist and then it was a short wait before we saw the Doctor. I love a short wait!</div>
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The doctor was friendly, inclusive of my son and asked questions about his health and schooling directly to him (as well as me of course.) It is much appreciated that Dr. M spoke directly to Rhett, not over him or around him. So many health care professionals do this, talk of him as if he's not there, and it is unnecessary, to say the least. I digress...</div>
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Once a plan is agreed upon, we then moved on to the "store" where a "Bud Specialist" is to educate and help me choose a Licensed Provider. This is where the waiting took place for us! An hour at least before we were able to meet with staff. The boys were antsy but oh so patient in the scheme of things!</div>
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Now that I am home, I feel I could have used more detail during the choosing process. The CBD oil prescription we need is "in production" and only one producer in Canada makes it. Ugh! What this means is registering with two producers (no biggie) and ordering two oils to combine and make what I need. A little nerve wracking, but not really since I've been dealing with dosages and splitting meds and blah blah blah for many years.</div>
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So now, we wait. After registering with the producers, we wait for the paperwork to be received on their end which should take 2-3 weeks. Then an order is place and shipped directly to our home.</div>
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This afternoon, my boy almost lifted off his chair when he heard me report to the doctor the 99 seizures since Christmas Day. As I write this the tally is up to 107, so that is one reason to try CBD oil. Well, a mere 107 reasons.</div>
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Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-86764540905393407472017-01-06T22:01:00.002-08:002017-01-06T22:01:48.721-08:00Special HandsThe Seizure Monster.<br />
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Partial Complex Seizures stemming from the Motor Cortex.<br />
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A tingly hand, sometimes a tingle in the brain. A hand that will not respond.<br />
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10-60 seconds.<br />
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48 Partial Complex Seizures since Christmas morning.<br />
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One med increase: another 175 mg of Trileptal.<br />
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One 9 yr old boy who worries that he is going to need surgery again, who is concerned that he has "that type where you have hundreds of seizures a day that cause damage."<br />
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Many hearts melting each time another Seizure Monster rears it's tingly head. Many prayers being sent up for Rhett. Many thoughts and plans and wishes mulled over. Many questions. Many fears. Many hugs and laughs and continuing on.<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-90337847652208738162016-12-30T23:04:00.000-08:002016-12-30T23:24:53.196-08:00The Closing of ChristmasAnother Christmas season has come to an end.<br />
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The month of December was quieter than usual, in some ways, and jam packed from the 21st on.<br />
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We were blessed to ride the Polar Express. It was magical, even to our older children and adults. The Alberta Prairie Railway puts together a Christmas experience worth attending, especially if your children are under 10yrs. We loved the whole experience! The staff dancing to Hot Chocolate and serving up delicious chocolatey beverage in mugs that are gifted to us. Followed by a gooey, chocolate chip cookie, the reading of the story The Polar Express and then arriving in the North Pole to see Santa and his Elves waiting for the train. Hearing the children yell "Back it up! Back it up! " to encourage the engineer to reverse and pick up the jolly old elf himself, gave me goosebumps.<br />
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It truly was a sweet experience and one that our boys will remember forever.<br />
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Spending time with those you love, family or friends is an important aspect of Christmas. This year we traveled to my brother's and were blessed to stay with them for two nights, celebrating Christmas with a multitude of family members. Even though it has been years since seeing my SIL's family they opened their hearts to the boys. We all felt special and included. That is how we should all feel on Christmas Day.<br />
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Our 5 hour road trip home included two stops to visit with special cousins and friends. It was a long, long day yet worth the effort to spend time with friends & family. Afterward there was still a 3 hr drive facing us in the midst of a gale force Chinook. The weather change by 20 degrees and the winds wreaked havoc on the roads. Thankfully, Brad was driving, the boys were sleeping and we made it home safe and sound.<br />
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As we wind down from Christmas, and contemplate taking the decorations down I find that the New Year is on my mind. Resolutions? No. The need to reorganize and refocus? Yes. First, lets start with the home cause it is a Christmas disaster!<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-90846567651668455282016-12-06T23:22:00.001-08:002016-12-06T23:22:41.957-08:00The Legend of St. Nicholas continues....Warner's first homeschool Christmas we studied St. Nicholas. He resonated with the legend. Loved the idea of a man riding through the streets and secretly giving gold to help others. So, we adopted a very simple recognition of St. Nicholas Day.<br />
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Now, he and Rhett both look forward to St. Nicholas Day. It's "trailer for Christmas, like a preview" according to Warner.<br />
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Although one.more.thing. to organize and prepare for at Christmas is the LAST thing I want, St. Nicholas Day is fun. Advent kicks off the season and St. Nicholas Day just keeps it going.<br />
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The shoes are set out, the tiny gifts are placed along with chocolate gold coins. Breakfast is slowly baking in the crockpot. This year it's an easy Bumbleberry Crisp. The table is set with festive Santa plates and even a Santa and Rudolph snow globe. We are ready!<br />
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If only the rest of Christmas was this simple?!<br />
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Happy St. Nicholas Day to you!<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-81681116576767099242016-11-02T10:17:00.000-07:002016-11-02T10:20:46.869-07:00How It All BeganOur Rhett was a perfectly healthy, aDORable, meeting all his milestones baby....so when the seizures began at eight months we were stunned.....and entertaining denial. There couldn't be something wrong with our sweet baby. Every parent's fear.<br />
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How did the seizures begin? What did they look like?<br />
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Baby Rhett, "Bup" as Warner named him, had just woke from a nap. As I went to pick him up, his head was handing to the right and down and he didn't respond when I spoke to him. That was the beginning.<br />
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After two more of these episodes over the next two weeks, I knew something was very wrong. I was scared to even tell anyone. Can you imagine that? Witnessing something that is just not right with your babe, but being scared to voice these fears as then they are REAL. Was I simply a new (ish) mom over reacting? Was I exaggerating what I was seeing?<br />
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It wasn't until a month later, that anyone else witnessed these episodes other than me. First my mom. We were folding laundry together and Rhett was standing, holding onto the laundry basket. He wasn't walking or fully standing on his own yet. Suddenly his head dropped, his right hand let go of the basket and he wouldn't respond to my mom's voice.<br />
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"Rhett. Rhett. Margo, what's he doing?" said my mom with alarm in her voice. For the record, my mom basically never shows alarm. Seriously. Rarely ever. So just the fact that she saw what I saw and that it scared her terrified me. Even all these years later, as I write this, my eyes tear because hind sight is 100%, and my mom's concern reiterates how obvious and scary those seizures were.<br />
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That was the beginning.<br />
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Soon, my husband witnessed a seizure.<br />
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Now my fears are shared and we act. An appointment is made with our family doctor. Of course, it takes two weeks to see her. In the mean time, the "episodes" are increasing in frequency. They have escalated from once every two weeks, to weekly, to hourly. The evening of the hourly incident we are dining at a friends. They see our baby drop his head onto my shoulder, his right arm stiffen, and the inability to respond when we talk to him. It is hard to share this with others. It is scary. Sad. Unknown. That night we forget about our upcoming doctor's appointment and head to the emergency department at our local Children's Hospital in stead. This is too much. This cannot wait another day let alone week.<br />
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Rhett and I spend hours there. Undergoing questions and questions and questions. Finally a psych staff member witnesses a seizure too and sees this is not in my head, he is not seeking attention (seriously, I was asked that), this is not about my marriage or finances or abuse, this is a beautiful baby boy having seizures.<br />
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I clearly remember driving home early the next morning, with a sleeping Rhett in his car seat, all bundled up in an ambulatory EEG, talking on the phone to my dear friend MJ, teary that our sweet Rhett has Epilepsy and we don't know why.<br />
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This is the beginning of Rhett's seizure story.Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com1tag:blogger.com,1999:blog-1708388333150492994.post-24310765872639989172016-11-01T10:31:00.001-07:002016-11-01T10:31:33.987-07:00November Epilepsy Awareness Month<div style="text-align: center;">
<span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">November is Epilepsy Awareness month. </span></div>
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<br style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;" /><span style="background-color: white; color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">This year I will be posting and blogging Rhett's story. Although Rhett's seizures are quite controlled through meds and a past neurosurgery, it's important to share what he has been through, how far he has come and how the seizures affect him even though they are not visible to your eye. An observer may not notice Rhett's seizures and they are not of the "grand mal" (old term)...generalized tonic clonic type, yet they are still importa</span><span class="text_exposed_show" style="background-color: white; color: #1d2129; display: inline; font-family: Helvetica, Arial, sans-serif; font-size: 14px;">nt, they still cause changes and damage. My decision to share is a reminder to everyone including myself how amazing Rhett is and that Epilepsy affects people, always. We all can handle a little more compassion and awareness towards our friends living with seizures. </span><br />
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<span class="text_exposed_show" style="background-color: white; color: #1d2129; display: inline; font-family: Helvetica, Arial, sans-serif; font-size: 14px;"><br />So, join us for a month of celebration (yes, we have much to celebrate!), education and remembering all we've been through.<br />xxx</span>Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com1tag:blogger.com,1999:blog-1708388333150492994.post-4400653014280945162016-09-30T10:35:00.001-07:002016-12-30T23:17:08.024-08:00Forest Walk <br />
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Walking in the cool fall sunshine, we explored our local forest to identify and recognize the trees that live in our area. It was so lovely to walk and pay attention to our surroundings, to be.<br />
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Of course, nature isn't everyone's interest and there were moments of me reaffirming to one of our scholars that we were there to to LEARN and OBSERVE and it's much more interesting if you PARTICIPATE. Ack! Even though this is the ideal way to learn it doesn't mean it's always easy, especially when one isn't interested in trees. Oy!<br />
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However, we all enjoyed being outside, with our friends and even learned new information and spike our interests in the difference between Spruce, Pine and Fir trees. And that is the most important part of learning isn't? Interest. Desire. Questions.<br />
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An afternoon well spent, an education well met.</div>
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-14795709967759031532016-09-30T10:35:00.000-07:002016-11-01T10:37:31.123-07:00Forest Walk <br />
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Walking in the cool fall sunshine, we explored our local forest to identify and recognize the trees that live in our area. It was so lovely to walk and pay attention to our surroundings, to be.<br />
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Of course, nature isn't everyone's interest and there were moments of me reaffirming to one of our scholars that we were there to to LEARN and OBSERVE and it's much more interesting if you PARTICIPATE. Ack! Even though this is the ideal way to learn it doesn't mean it's always easy, especially when one isn't interested in trees. Oy!<br />
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However, we all enjoyed being outside, with our friends and even learned new information and spike our interests in the difference between Spruce, Pine and Fir trees. And that is the most important part of learning isn't? Interest. Desire. Questions.<br />
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An afternoon well spent, an education well met.</div>
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-34260067297687664092016-09-11T16:11:00.001-07:002016-09-11T16:11:05.074-07:00Love<div class="separator" style="clear: both; text-align: center;">
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I love this trio.<br />
And that is all.<br />
<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-47805841106938702932016-09-05T19:05:00.000-07:002016-09-05T19:05:57.923-07:00Hello Fall!Fall is more of a "New Year" than Jan. Falling leaves, cool evenings, new beginnings in schoolwork, and activities. Truthfully Fall is my favourite.<br />
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Today a little Autumnal Decor was added to our home such as this table centre piece. Natural and neutral. Found wasp hives, found deer antlers, Indian corn and a squash in a cedar window box place on my grandma's wool blanket. Everything was shopped from the home or barn. I love that nothing was purchased new!<br />
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I have plans for pale blue pumpkins but had a spray paint fail today. Round two on another day.<br />
<img src="webkit-fake-url://709fa03c-5bd3-43a6-b08d-2e980febe331/imagejpeg" />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-80250321581425990762016-05-08T16:09:00.000-07:002016-05-08T16:09:12.865-07:00My Day Without Words<div class="separator" style="clear: both; text-align: center;">
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-76512791025220236542016-03-17T12:59:00.000-07:002016-03-17T21:19:37.829-07:00BodyTalkA new adventure.<br />
Recently I took the fundamentals course in BodyTalk. My goal is to offer treatments from our home. The sunroom is the perfect room for it!<br />
BodyTalk is a gentle modality used to free blockages in our bodies. It's really quite profound how such a gentle approach can have some amazing results.<br />
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One client wrote to me "You have a gift girl! Last night I slept with out sleep aids which I haven't done in forever and my mind is so much clearer this week. Thank you !!"<br />
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How wonderful!<br />
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I'll share more about BodyTalk in future posts, until then if you want to learn more click on the IBA Link,<a href="https://www.blogger.com/"><span id="goog_450787932"></span> International BodyTalk Association.</a><br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-71135558685143337642016-03-17T12:55:00.000-07:002016-03-17T21:23:00.510-07:00AdvocatingIt never ends. Advocating for your children.<br />
Pushing, teaching, explaining.<br />
It's frustrating yet necessary.<br />
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The boys are in homeschool classes at our homeschool board. Both have one to one support in class with a mentor. We are so blessed. While they learn, I am writing.<br />
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While I write to a contact at the Ministry of Education to explain once again why Rhett is eligible for severe disabilities funding. The constant push-pull of advocating. Be strong, be clear, be factual. When really I want to send a picture of Rhett's MRI, circle the black holes where there used to be a temporal lobe & hypocampus and write, " Nope, didn't grow back!! Still needs help!" 😋<br />
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Somehow that direct approach may not be welcome.<br />
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The Wheels On The Bus started playing in my head as the most recent email was typed. A fitting theme song for special needs advocacy and all parents!<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0tag:blogger.com,1999:blog-1708388333150492994.post-14437835596901876562016-01-23T16:49:00.000-08:002016-01-23T16:49:34.848-08:00Date Night, 10yr old Style<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;">Acquarium at Bass Pro Sports - image from Bass Pro</td></tr>
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Warner and I had a much anticipate date night last night. We had been looking forward to it all week, especially Warner.<br />
Ever wonder the way to a ten year old boy's heart? Well, here's how you can win my Warner's.<br />
First take him to <a href="http://www.basspro.com/webapp/wcs/stores/servlet/CFPageC?storeId=10151&catalogId=10051&langId=-1&appID=94&storeID=75&tab=3">Bass Pro Sports</a> to play "the shooting game". 50 cents for a round of (laser) shots at targets that make taxidermied animals move. <br />
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<tr><td class="tr-caption" style="text-align: center;">"the shooting game" image from Bass Pro<br /><br /></td></tr>
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Next we were off to<a href="http://www.crossironmills.com/en/stores/murdawg-apparel/"> Murdawg</a> to purchase a much sought after Five Nights at Freddy's tshirt and <a href="http://www.amazon.com/JINX-Minecraft-Foil-Sticker-Pack/dp/B00VH16MNA/ref=sr_1_1?ie=UTF8&qid=1453596104&sr=8-1&keywords=minecraft+foil+sticker+pack">Minecraft trading cards</a> for his little brother.<br />
After dining on a 5 dollar fill up at KFC it was across the mall to Cinescape for a few more video games.<br />
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I tell you my heart was racing, palpitating after the Jurassic Park game and I seriously had my inside voice telling me about getting healthy so as to survive video loving boys!!!<br />
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All of these activities go against my heart but they are what he loves and it was a rare date. I hate video games. I hate taxidermy and dead animals and hunting. I hate guns. Sadly, I love KFC!! BUT Warner had the best time and was so thrilled that I did played games with him, which I almost never do. So what's a good mom to do?!<br />
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<br />Mrs. Mhttp://www.blogger.com/profile/02626193534014237894noreply@blogger.com0