Alone Time

Oh the silence. Other than the sound of a book I am listening to on Audible. The children and my sweet husband are out for the evening to invest the boys into Beavers and Cubs.

I love, love, looooove being home alone. A little down time, a little silence, a little adult noise. Ahem, the dishwasher and the IPHONE.  It's peaceful. The sky is dark and so is the house.

Our life here at RWB has revolved around the boys, our family's work'n'dad's home schedule, and just day to day life. The unexciting and definitely not mundane. We are homeschooling both boys, continuing with our work away & solo parenting schedule, friends, and  lego  lifestyle.

Recently, blogging has been inching back into the edges of my mind again. I have missed you and missed blogging.  So here I am, writing, while listening to an audio book, in the dark and enjoying this small process of re-opening the blog.

Until next time.....

Today's Motto

If they don't offer....don't ask. 

It's summer time and the boys have been blessed to spend this week's mornings at Lego Camp. 

They are living it! 

As of yesterday, and of course that opinion is subject to change....without notice. 

Today's motto stems from morning drop off as I ASKED the instructor ( whom we have had on diff occasions) how it went yesterday.  

Reply: 

(Pause) 

"OK. "

(pause)

"There were some tense moments."

*sinking...sinking* Ugh. 

Well. 

He didn't offer up any further info & I'm not asking (yet) as Warner and Rhett are happy, and all looked well at the end of end of the day yesterday......so  I'm not asking. ;)

TSC Interview

On International TSC Day, May 15th, I had the honor of interviewing two individuals who are touched by TSC, heart and soul.

I loved it! The whole interview and could have talked for much longer than 10 minutes.

Hopefully, the audio will be available soon so that I can share with you.

Until then, TSC month is coming to a close. Yes, May is wrapping up. So I shall leave you with this fact:

Also, a picture of this TSC Cutie, our Rhett, who happens to be 6yrs now. Six years spent dealing with the ups & downs of Tuberous Sclerosis.

Be a Hero

All our Blue Day for TSC plans have been shelved as the boys and I are ill with a virus.

So a little shout out to our HERO friends who wore blue today for Rhett, took the time to teach their kiddos how to pronounce Tuberous Sclerosis and are doing their part to increase awareness.
xoxo

Tuberous Sclerosis Blue

The blog has been a bit quiet...but that's about to change...and it's not that TS has been forgotten. Goodness no!How could I forget my luvbug Rhett and "The Maybe Disease" he lives with.
 However, I've been posting TS facts on my facebook page, trying that avenue for a change.

Here I return. Home. The blog feels like "home" and I like that.

So....have you done anything to accentuate your TSC Blue?
Read a little?  The TS Alliance...our American friends...have heaps of TS info.
Pinned a little? Pinterest is a wealth of information on many levels...including TS. Woot! Woot!
Lit your home? Your city? Shout out to Calgary and Toronto for turning on a blue light or two. The Langevine bridge and CN Tower are going blue on the 15th.

TSC Blue Langevine Bridge in Calgary.

 Medicine Hat...I shout out to you too. The mayor has declared May 15th as Global TSC Day in Medicine Hat. Woot! Woot!

It's all these "little things", that increase awareness and get people talking. Talking works. Talking means people are sharing...people are learning...and people take notice. That's all it takes. One big chat for a giant step forward.

By the way, stay tuned here....for an exciting Tuberous Sclerosis Surprise on Monday!

PS: I am SO excited! Click here for one little hint.

Blue

Blue is the "signature color" ( read that with a southern accent) of Tuberous Sclerosis.

The Maybe Disease that our Bup lives with.

And May TSC month.

And blue is the Color of Rhett's beautiful eyes....of which one has a tumor close to the centre of the retina, thanks to TSC.....but they are a beautiful blue, filled with mischief and love.

Little Monster

Seizure night tonight.
Just one.
In bed, snuggled up & reading a Berenstain Bears book when that limp arm & hand took over. Not sure why....so it's time to pay a little extra attention.

Hopefully, tonight's "wiggly hand" is just a blip...a subtle reminder.