Last night as I was tucking R into bed, a seizure joined us.
"My hand is wiggly Mommy"
As he tried to lift his chubby arm to show me it flopped down and hit Jim in the cheek.
Thank heavens he giggled because inside I cringed and if he had showed concern, well.....it would have brought me to my knees.
Wiggly aaaand floppy.....it cracked R up!
Later though, after the stories had been read and the songs had been sung, while we were having a "snuggle",
A little voice spoke up and asked,
"Why do I have wiggly hands?"
"What's a seizure?"
We have always told R what those daily meds are for .
How does one explain seizures and Tuberous Sclerosis to a child, to a 5yr old?
What would you say?
I need a little help here.
My responses to Rs questions:
Why? I wish I knew.
You have a tricky brain that sometimes tricks your body into doing funny things, like the "wiggly hand seizure"
It doesn't seem like enough.
Which was even more obvious to me this morning, when R crawled into bed and his first question was, "Do you ever have a wiggly hand Mommy?"