Sunday, February 13, 2011

"Not You Momma!"

Daddy's home and the Mommy is dirt.

Dirt, I say.

"Mommy, you can't watch my movie. Just Dad."

"Mommy, you go upstairs."

Once he was made to say sorry and advised to invite me to sit on the couch with them. To which he responded,

"Mommy. Mommy. I want you to sit on the couch. Mommy I want you to sit on the couch upstairs."

Ya, upfreakinstairs! Don't think it help that Daddy had to cover his mouth to stop the laughter. Upstairs my a**. Well, guess where I am?

Upstairs. I showed them didn't I?

Saturday, February 12, 2011

Birthday Toes

Friday W and I went on a date to the best birthday party ever! Two handsome little fellas are turning 6yrs and we were honored to celebrate with them.

Their momma threw the best bash for 6 yr old boys. Dinosaurs vs. Robots complete with a robot design competition, Robot Robot Dinosaur game, Musical Chairs, Robot and Dinosaur dancing, etc, etc.

My W had such a great time! I was so proud to see him participate happily in every activity and make new friends. One in particular was the little gal wearing these pinkalicious shoes. I think there is a little crush. ;)

These cute little painted toes, fingers and sparkly shoes could not go unnoticed. I just couldn't resist capturing them. Too cute!

Two Boys

These two little men keep me guessing and exhausted and laughing and a whole sort of things.

As you know, as a family we deal with ADHD and Tuberous Sclerosis on a daily basis. Lately, though the management of ADHD symptoms has been on the forefront of our radar. Which is in evitable cause it kind of has an "in your face" personality. So, TSC takes the back burner at times. Unfortunately, it's sneaking to the forefront again.

An afternoon spent at Clinical Genetics...for what I thought was supposed to be reviewing me and the hubster's Opthamology tests. Consequently, W and I didn't go just Bup and his Daddio and the fellow Geneticist was a little surprised and maybe not pleased? Oops!

Most of the appointment was reviewing info that is old news to us. Dr. Fellow Genetics trying to get to know us, I guess.

Although she was concerned about Bup's inability to draw lines and circles on demand. Really? He's 3yrs. Is he behind? I don't know. Didn't think so. This kid has the best tripod grip I've ever seen and has been counting over 20 for years. Seriously. Maybe there's some fine motor stuff to consider? Colors are an issue. We know that. He just isn't consistent with colors. Often cannot tell you the color but can pick it out. I find myself wondering if he really can't or WON'T. ?? Stumps me.

The date for Bup's long stay video EEG is set for March 21. Now to plan on how to entertain an almost 4yr old for a week in a hospital room. Read cannot leave the fact maybe not even the bed. Help!

Trileptal change...seems to be working. One "Wiggly Hand" today and they seem to be decreasing in frequency.
Two boys, two little men who like to throw us curve balls, and two different diagnoses to keep one step ahead of.

Sunday, February 6, 2011

The Heart of my Child

Recently W, R and I were walking and W pulled me down to whisper in my ear.
"I want to give someone a gift."

Okay. Thinking it must be for his dad or another family member.

A few moments later, another tug on my hand and whisper in my ear,
"It's for En." A little girl in his class.
" A My Little Pony."


Now let me share a little history here.
This little sweetie is a high energy gal with special needs of her own on so many levels. Right now her biggest need is love, safety and family. Miss En has recently been placed in temporary foster care and Social Services is searching for a long term foster home. This precious girl is now chauffeured to school, often by different drivers on a daily basis. She is hurting and lost. She is 5 yrs old and adorable. Filled with spunk and yet has the eyes of an old soul. Miss En is an amazing little being who deserves so much more than life is giving her right now. I wish I could take her home and keep her. *sigh* But she's not a stray kitten...and I cannot.

Back to W and Miss En.

W tells me he doesn't like it when people hurt Miss En and that she hasn't told him so because she knows it would upset him very, very much.

I have tried to explain Foster Care in a very 5yr old appropriate way. Whether I have succeeded...I don't know.

I do know that W has a heart of gold. A compassionate heart.

Mine swells with pride.

On Friday....W and his friend were inseparable. Unable to play with any other friend because they had each other, joined at the hip, friendly little hearts joined together too as only 5yr old friends could be.

Tuesday, February 1, 2011

Tasty Tuesday

My poor deprived children have been begging for cookies and yummy treats.
The poor neglected things. No sugar means very few treats.
So, I broke out the cookbooks, the Agave Nectar and the little race car apron. With a shirtless but apron clad young boy we made the best Free Eating Brownies. So good that a certain mother who forgot to put one in a snack bag for school was spoken to by no less than three people because it was very upsetting! It even came up in the IPP! So good that I'm going to share the recipe with you!


1/4 cup gluten free flour mix
1 TBSP flax seed meal
1/3 cup unsweetened cocoa powder
1/2 tsp salt
1/4 tsp xanthan gum
1/4 cup canola oil
1/2 cup honey (I use Agave Nectar)
2 eggs
1 tsp vanilla extract
2 TBSP water

Preheat oven to 350. Lightly grease a 9 in round or square pan.
In a medium size bowl, combine all dry ingredients. Stir briefly. Add the remaining ingredients and stir well. Batter will be the consistency of molasses. Spread in the prepared pan. Bake for 20-25 min, until a toothpick inserted in the middle tests cleanly and the top begins to appear dry.

Do you ever struggle getting your kiddos or even your husband to eat veggies? Although mine love veggies...meat first, veggies's nice to spice it up a bit for them. Most kids love a dip! Which is a challenge for our Free Eating regime.

And then I found this! The Nutty Broccoli. And sometimes I just go over the edge and only make the sauce. Imagine! Try it. It's pretty yummy. However, if you have nut issues, back away from the computer...far, far away.

Nutty Veggie Sauce
2 TBSP peanut butter or nut pea butter would work too!
1 TBSP Braggs or soy sauce
1 TBSP orange or apple juice
Mix ingredients together in a small saucepan on medium heat. Heat until warmed through. Serve over steamed broccoli or as a side for fresh veggies.