The last few days have been so emotional. We have cried so many tears.
I have never been so happy to hear a little boy say my name.
On Tuesday morning Bup went into surgery to have his right temporal lobe and hypocampus removed due to TSC tubers/tumors and their affect of seizures....that were not responding to meds. (Trileptal and Topomax)
5 hrs later, our little guy, was in recovery and we were still waiting to see him. Meeting him in PICU was the epitome of bittersweet. I cried and cried and could not talk to the doctors. I just wanted to crawl under all those wires and lines and hold him. Thank goodness my sweet husband was there as he had all the wits that escaped me!
We seem to tag team on that. When one of us is super emotional the other is calm and has it all together. Then later for whatever reason, the roles reverse. Thank heavens!
Bup is a star! Within hours of surgery, with eyes still closed, one swollen shut, he is eating popsicles, drinking apple juice and quietly telling his auntie that she cannot eat his popsicle!
His first night in PICU, he woke up and requested to watch Dora!
This kid is amazing!!!
Today the pain meds have been decreased dramatically and tomorrow we are hoping to take the bandages off....scary! Move his lines so that he can have a bath and get out of bed a little bit.
It's been a crazy two days. I cannot believe we are here. In some ways it is so surreal. In other ways it feels like it's been forever, not 2 days. In fact Rhett asked if this is our home. Poor buddy.
Right now....at this very moment....we are all calm and okay. But that is subject to change....like the weather here in Calgary....every 5 minutes!