Friday, June 3, 2011

It's a Date!

(R's tumor to be removed is near the Amygdala & long as it doesn't cover the cortex, it will be removed)
June 28th!
Sounds like a good day for a temporal lobe resection.
It's also the birthday of a sweet friend from my home town, so that's a good omen right?

We are in a slight case of shock because the date has come so quickly. It seems fast to us. Yesterday felt like a bucket of ice water being thrown in our faces. This whole neuro surgery business is all too real now.

However, I must say I ASKED for this. Seriously, God or One Power or whatever you call it, was listening and answered my spoken prayer because two days ago I voice that I was going to request a surgery date for the first week of July because I wanted the summer for R to heal and not to have R in the throws of surgery the same week as W starts Grade 1.

And now look what happened! HE listened. HE answered.
So, I need to "suck it up Princess" and get on with it!

Organize care for W.
Prepare both boys for surgery. How do you prepare a 4yr old to have his brain cut into?
Prepare ourselves.
More appointments. Cardiology is next. Then the MRI and Interictal Spect.

Let's be honest here. I am freaked out. Completely and utterly. I am negative and feeling as if the glass is half empty. My husband, sweet soul that he is, is my support. The voice of reason, common sense, etc. I need to emulate him. And will try. For the sanity of all involved!


  1. Isn't it amazing how things happen? They say if you "put it out there" it will happen, and in this case, I'd say HE definitely listened to you. As scary as may be, I'd take it as a serious sign of positiveness! And just to be on the safe side, I'm sending you all some positive vibes :)

  2. I give you total permission to go a little crazy between now and when you're back at home snuggling your baby boy on The Healing Side. I only kept my sanity before hand because I had two other munchkins running me too ragged to think. And then once we were there. Pre-op stuff kept us busy. But I still remember fighting the urge to throw my body on the gurney and scream for them to STOP!!!!!!!!!!! It was real, but honest urge. Which I can now thank God I didn't cave to. Because now we're safely on the other side...



  3. It is also my mom's birthday (and the last day of school here) so for SURE it is an auspicious omen!

    As always I'm in awe of your fierce mother instinct to protect your little man (men).
    Isn't there a saying about how courage doesn't mean that you're not afraid, it means going ahead anyway. You have great courage.
    Your family will be in my thoughts and prayers.

  4. Thank you my sweet friends.