Tuesday, May 28, 2013

TSC Interview

On International TSC Day, May 15th, I had the honor of interviewing two individuals who are touched by TSC, heart and soul.

I loved it! The whole interview and could have talked for much longer than 10 minutes.

Hopefully, the audio will be available soon so that I can share with you.

Until then, TSC month is coming to a close. Yes, May is wrapping up. So I shall leave you with this fact:

Also, a picture of this TSC Cutie, our Rhett, who happens to be 6yrs now. Six years spent dealing with the ups & downs of Tuberous Sclerosis.

Wednesday, May 15, 2013

Be a Hero

All our Blue Day for TSC plans have been shelved as the boys and I are ill with a virus.

So a little shout out to our HERO friends who wore blue today for Rhett, took the time to teach their kiddos how to pronounce Tuberous Sclerosis and are doing their part to increase awareness.

Friday, May 10, 2013

Tuberous Sclerosis Blue

The blog has been a bit quiet...but that's about to change...and it's not that TS has been forgotten. Goodness no!How could I forget my luvbug Rhett and "The Maybe Disease" he lives with.
 However, I've been posting TS facts on my facebook page, trying that avenue for a change.

Here I return. Home. The blog feels like "home" and I like that.

So....have you done anything to accentuate your TSC Blue?
Read a little?  The TS Alliance...our American friends...have heaps of TS info.
Pinned a little? Pinterest is a wealth of information on many levels...including TS. Woot! Woot!
Lit your home? Your city? Shout out to Calgary and Toronto for turning on a blue light or two. The Langevine bridge and CN Tower are going blue on the 15th.
TSC Blue Langevine Bridge in Calgary.

 Medicine Hat...I shout out to you too. The mayor has declared May 15th as Global TSC Day in Medicine Hat. Woot! Woot!

It's all these "little things", that increase awareness and get people talking. Talking works. Talking means people are sharing...people are learning...and people take notice. That's all it takes. One big chat for a giant step forward.

By the way, stay tuned here....for an exciting Tuberous Sclerosis Surprise on Monday!

PS: I am SO excited! Click here for one little hint.

Wednesday, May 1, 2013


Blue is the "signature color" ( read that with a southern accent) of Tuberous Sclerosis.

The Maybe Disease that our Bup lives with.

And May TSC month.

And blue is the Color of Rhett's beautiful eyes....of which one has a tumor close to the centre of the retina, thanks to TSC.....but they are a beautiful blue, filled with mischief and love.