Wedding Sneak-a-Peak

The main event we attended in Las Vegas was the wedding of B's baby brother.

It was lovely...heartsy...sweet....teary and went off without a hitch.

Here's a little peak of the day...just a teensy tiny teaser.

Wedding Sneak-a-Peak

The main event we attended in Las Vegas was the wedding of B's baby brother.

It was lovely...heartsy...sweet....teary and went off without a hitch.

Here's a little peak of the day...just a teensy tiny teaser.

Mama Made It Giveaway

...and I'm not the Mama!
Check out My Mama Made It for her latest design and cape giveaway. There's still time!
I've really been enjoying her site and feel inspired by her work. In fact, so inspired that I have ordered from her Etsy shop, created two flowers, two sloves and two ruffled scarves.
Which I will post about in the future.
Until then, go on over to Lexi's blog and enjoy!

Mama Made It Giveaway

...and I'm not the Mama!
Check out My Mama Made It for her latest design and cape giveaway. There's still time!
I've really been enjoying her site and feel inspired by her work. In fact, so inspired that I have ordered from her Etsy shop, created two flowers, two sloves and two ruffled scarves.
Which I will post about in the future.
Until then, go on over to Lexi's blog and enjoy!

Nephrology Today - Tuberous Sclerosis Update

Bup's first appointment with Nephrology since the Tuberous Sclerosis diagnosis.

This appointment was necessary because R does have tubers/cysts/tumors in his right kidney, lower pole which is quite "normal" with TSC. Having explained that, there have been no side effects yet often there aren't until kidney failure has set in or they have become malignant. Also PKU is very common with TSC as the gene is side by side. So, it would be nice to know if R's TSC is TSC1 or TSC2 which we will not be finding out as those genetic tests are not done in Canada...and the region is in a deficit which means no spending!

The outcome of today's appointment with the Nephrologist?

Nothing. No new information.

We saw the Resident....who had NOT read Bup's file and had to be filled in starting at day one. Ugh.

Then we waited....and waited...

until I let the staff know that we would be leaving because I also had to pick up W from school and time was a tickin'!

Well, that got Dr. Nephrologist out of his cozy office! Dr. N spoke with me in the waiting area. (So much for confidentiality!) The conversation was also more of me filling him in and advising that it is 8 months since the last abdominal ultrasound at which time the tubers had shown growth so time for another referral...to which he agreed.

And I was only 2 minutes late for picking up W from school!

Lesson of the TSC Day? Doc's do not pre-read files, and they will get their tuckas in gear if prompted...SOOOO....always be the assertive, maybe a little impatient patient....that's what gets things shakin' at the Dairy Queen Honey!

Nephrology Today - Tuberous Sclerosis Update

Bup's first appointment with Nephrology since the Tuberous Sclerosis diagnosis.

This appointment was necessary because R does have tubers/cysts/tumors in his right kidney, lower pole which is quite "normal" with TSC. Having explained that, there have been no side effects yet often there aren't until kidney failure has set in or they have become malignant. Also PKU is very common with TSC as the gene is side by side. So, it would be nice to know if R's TSC is TSC1 or TSC2 which we will not be finding out as those genetic tests are not done in Canada...and the region is in a deficit which means no spending!

The outcome of today's appointment with the Nephrologist?

Nothing. No new information.

We saw the Resident....who had NOT read Bup's file and had to be filled in starting at day one. Ugh.

Then we waited....and waited...

until I let the staff know that we would be leaving because I also had to pick up W from school and time was a tickin'!

Well, that got Dr. Nephrologist out of his cozy office! Dr. N spoke with me in the waiting area. (So much for confidentiality!) The conversation was also more of me filling him in and advising that it is 8 months since the last abdominal ultrasound at which time the tubers had shown growth so time for another referral...to which he agreed.

And I was only 2 minutes late for picking up W from school!

Lesson of the TSC Day? Doc's do not pre-read files, and they will get their tuckas in gear if prompted...SOOOO....always be the assertive, maybe a little impatient patient....that's what gets things shakin' at the Dairy Queen Honey!

Welcome 2010

Happy New Year!

Time for celebrating...reflection...and plans for the future.

Celebrating...we're off to share this holiday with my family in my little hometown. I'm really quite looking forward to it as it's been ages since I've been home....long overdue.

Reflection....I'm okay with saying farewell to 2009...this was a year of learning and perseverance in regards to advocating for my sons...lessons in the need for self care...loss of friends...pride in awareness work for Epilepsy and Cancer....lots of laughter and antics from the boys...etc, etc.

Future Plans...well, firstly, our little weekend get-away to Las Vegas. Woot! Woot!

Plans for self-care...even joining a weight loss competition at work (ack! what was I thinking!!)...hair re-growth...organizing a girls' night in on a regular basis....and more importantly plans for more positive thoughts, laughter and enjoying my life..the little things...cause really, that's what it's all about.

So, 2010, bring us all peace, prosperity, and good health. The basics. That's what we need. Bring it on!

May the turning of the calendar be a time of peace and joy for you.

See you next year!

Mrs. M

PS: "See you next year" I clearly remember sobbing as a little girl when my father said this to me as he & my mom left for a New Year's celebration. I was devestated! Cause I really thought it would be a whole year!