It's been noticed by myself and his teachers that during or after seizure activity, these tumors are so prominent. They are red, and even more raised.
Also, they seem to be spreading.
When R is sick, feverish, under the weather...well, there's no hiding these little bumps at all. They just jump right out!
Any TSC mom's find the same? That during and immediately after a seizure the FAs are very obvious?
R's poor little face. Makes me sad and want to kiss him and scrub him and lotion those sweet cheeks until they disappear.
If only it was that easy....