Current Events

This past week there has been a roller coaster of emotion, trepidation, and maybe a little relief. We have spent time at the Children's Hospital, the family Drs office and then the waiting game and today we were back at ACH to receive the results from
R's EEG. He has been diagnosed with Epilepsy. That's hard to hear about our baby, our perfect little man, but in a strange way there is an element of relief there as well. My thoughts had run away from me from time to time while we waited for the results, imagining the worst possible diagnosis, but to hear Epilepsy...as upsetting as this is...is so much better than other alternatives, other than perfect health of course.
So, now what? Now we learn. We immerse ourselves in information, ask questions, and take care of our Bup. He's begun a med which should eliminate all the seizures. Oh, how wonderful that will be! It's hard to witness them without panicking and their frequency has increased over the past few months. Today there were 5. As much as I hate putting meds into his little body, this is a necessity. Please let them work.
And there is more waiting. We are waiting for an MRI date. Unfortunately, as wonderful as our health care system is, all does not happen in a timely fashion. We're back at the hospital tomorrow for a follow up appointment so hopefully we will be able to receive an MRI date then.
Little R is such a trooper. He did so well at the hospital last week even though we were there for 8 hrs with little sleep and little food, he rarely complained. Until the EEG was hooked up. There's no physical pain involved in the exam just frustration at having to lay down & then have 25 electrodes glued to your head. Poor fella! I would complain too. It's always scary to put your child through tests, and maybe we're a morbid kind of family, but there was some humor too. R looked like a little space man with the EEG hooked up and his little Shrek backpack on. Poor little cutie!
So, here's the story of our R's most recent current event. Tomorrow is a new day. A day to celebrate having health and our family. Celebrate yours too.