TSC Update

Last week found us at Children's Hospital for tests.

Abdominal Ultrasounds.

Bup did great. He cried a little but stayed pretty still and when I offered to sing, he sniffled a "Yup" and just lay there quietly while I crooned Twinkle Twinkle Little Star, Hi -Lili Hi -Lo & You Are My Sunshine. Sweet little fella. Easy to please.

The Tech said it looks like the tumors on his kidneys haven't changed. Wuhoo! We'll get the official results from Dr. Genetics in a week or so. Honestly, I wasn't one bit worried about this...just felt in my core that they would be okay.

W had his first abdominal ultrasound to check for TSC that day too. The poor guy. We talked and talked about it but when the moment arrived he was scared....fighting scared. I felt so bad for him. He screamed and cried and tried to get away and begged for me to help him. It hurts your heart to witness that kind of emotion in your child. Unfortunately the Tech was slightly maimed in the process with a kick to the head. Yet, I still felt worse for W.

No results yet. And I'm not worried. He's not presenting any problems so it'll be fine.

However, I am dreading this Thursday as it's MRI time for W.

Yes, an anesthetic is used. But if his fear & reaction is this strong over an ultrasound can you only imagine how many of us it will take to hold him down for the anesthetic mask? Oh, my poor boy. I do hope he surprises us all. It'll be a relief to have this testing completed and behind us.