Those who are close to us know all about R's Tuberous Sclerosis diagnosis and struggles. The seizures, the surgery, the meds, the speech, fine motor and gross motor delays and all that comes with TSC.
Most are understanding, sympathetic and encouraging.
The question is do I explain and tell others? IE: gymnastics coaches.
I don't know why I'm hesitating to do so.
But I feel I need to...yet don't want to. I want the coaches and others to see how great he is doing....to realize he has anxiety and needs extra encouragement...that when he hangs back and doesn't join in, he's scared and needs help....that the fact that he can do a somersault and balance on a low beam is amazing.
That his funny baby calf let loose jumps on the trampoline is a big deal!
That he just learned to stand on one foot and cross his fingers on one hand over the Christmas break and is SO PROUD!
That he needs smaller, shorter, simpler directions.
B would tell. B the D...the awesome dad. HE keeps a pic of R from ICU, post surgery, and has been known to show it to people....like the PUF Intake Coordinator and R's coach last session. I don't have said pic on my phone. I keep it in.
Yet, part of me doesn't want to keep it in. I feel like I'm making a big deal of something....attention grabbing or something....I just don't know....
What do you think you would do if you were me?